Whether you’re looking to understand more about your symptoms or you’ve been recently diagnosed with HCM, here are resources to help you learn more about HCM.
Sign up for more information
If you have questions about HCM, we want to help. To sign up for additional information about HCM:
Sign up to receive educational information, doctor discussion tips, and symptom-tracking support tools. You’ll also discover organizations and associations that may be able to provide you with even more helpful information.
HCM Resource Hub
The resources in the HCM hub are available to help you have an informed discussion about HCM with a doctor. You can use the interactive guide online or download a guide that you can customize when you print it.
Learn what questions to ask to help you get the answers you’re looking for.
Use this list to help monitor your symptoms and bring it with you to your next doctor appointment.
Identify potential indicators for HCM and if anyone in your family has been affected by them.
Informative Videos
This is HCM
HCM can affect anyone at any age and everyone’s experience with HCM is different. Learn more about the condition in this short video.
Watch the video to learn more about HCM and what happens in the body when a person has HCM.
Watch Video
Family History
Dr. Michael Ackerman, a cardiologist and geneticist, explains the importance of knowing your family’s heart health history. Once you watch the video, you can record your family’s information using the interactive Family Tree Guide here.
Learn why it’s important to know your family’s heart health history.
Watch VideoDr. Ackerman was compensated for his time in the creation of this video.
Dr. Ackerman was compensated for his time in the creation of this video.
Real Patients
Searching for answers when you’re struggling with unexplained symptoms can be a long road with many turns along the way. See how others navigated their journey.
Watch as patients share their unique personal experiences, from the first signs that something wasn’t right to being diagnosed with HCM.
Watch VideoPreston was compensated for his time in the creation of this
video.
Preston was compensated for his time in the creation of this video.
Patients tell how they became more aware, educated, and empowered with a correct diagnosis.
Watch VideoKristen was compensated for her time in the creation of this video.
Kristen was compensated for her time in the creation of this video.
Heart Health Advocacy Groups
In addition to talking to your doctor, you can visit the websites of these advocacy groups for more information about HCM:
American Heart Association
The American Heart Association is a relentless force for a world of longer, healthier lives for all. www.heart.org/en/health-topics/cardiomyopathy/what-is-cardiomyopathy-in-adults/hypertrophic-cardiomyopathy
Focused on providing support, advocacy, and education to patients, families, and the medical community on HCM while supporting research and fostering the development of treatments. www.4hcm.org
Focused on inspiring hope and improving the quality of life of heart patients and their families through peer-to-peer support, education, and advocacy. www.mendedhearts.org
Focused on improving the health and quality of life of women living with or at risk of heart disease and advocating for their benefit.
www.womenheart.org/find-support
A program sponsored by the Heart Rhythm Society (HRS), connecting patients, caregivers, and healthcare providers to form a unified team. www.upbeat.org
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