HCM Resources
Stay informed
Whether you’re looking to understand more about your symptoms, or you’ve been recently diagnosed with HCM, here are resources to help you learn more about HCM.
Sign up for more information
If you have questions about HCM, we want to help. To sign up for additional information about HCM:
CALL 1-866-4HCM-INFO
(866-442-6463) 8 AM to 8 PM, ET,
Monday-Friday
OR
Sign up to receive educational information, doctor discussion tips, and symptom-tracking support tools. You’ll also discover organizations and associations that may be able to provide you with even more helpful information.
HCM Resource Hub
The resources in the HCM hub are available to help you have an informed discussion about HCM with a doctor. You can use the interactive guide online or download a guide that you can customize when you print it.
Doctor Discussion Guide
Learn what questions to ask to help you get the answers you’re looking for.
Or download a guide:
Symptom Guide
Use this list to help monitor your symptoms and bring it with you to your next doctor appointment.
Or download a guide:
Family Tree Guide
Identify potential indicators for HCM and if anyone in your family has been affected by them.
Informative Videos
This is HCM
HCM can affect anyone at any age and everyone’s experience with HCM is different. Learn more about the condition in this short video.
Watch the video to learn more about HCM and what happens in the body when a person has HCM.
Family History
Dr. Michael Ackerman, a cardiologist and geneticist, explains the importance of knowing your family’s heart health history. Once you watch the video, you can record your family’s information using the interactive Family Tree Guide here.
Learn why it’s important to know your family’s heart health history.
Dr. Ackerman was compensated for his time in the creation of this video.
Real Patients
Searching for answers when you’re struggling with unexplained symptoms can be a long road with many turns along the way. See how others navigated their journey.
Watch as patients share their unique personal experiences, from the first signs that something wasn’t right to being diagnosed with HCM.
Preston was compensated for his time in the creation of this video.
Patients tell how they became more aware, educated, and empowered with a correct diagnosis.
Kristen was compensated for her time in the creation of this video.
Heart Health Advocacy Groups
In addition to talking to your doctor, you can visit the websites of these advocacy groups for more information about HCM:
American Heart
Association
The American Heart Association is a relentless force for a world of longer, healthier lives for all.
Hypertrophic Cardiomyopathy Association (HCMA)
Focused on providing support, advocacy, and education to patients, families, and the medical community on HCM while supporting research and fostering the development of treatments.
The Mended Hearts, Inc.
Focused on inspiring hope and improving the quality of life of heart patients and their families through peer-to-peer support, education, and advocacy.
WomenHeart
Focused on improving the health and quality of life of women living with or at risk of heart disease and advocating for their benefit.
Clinical Trials for HCM
Clinical trials are an important part of the medication development process.
Learn more about current or future clinical trials for HCM at BMS Study Connect.
BMS Study Connect is a platform dedicated to increasing clinical trial awareness, participation, and engagement among patients, caregivers, and healthcare professionals. Visitors can learn about clinical trials and find a trial that might be a good fit for them or their loved ones. Individuals are then connected with study sites through completion of patient pre-screeners and online referrals.